Crown Princess Victoria of Sweden Patron of Riksförbundet Rare Diagnoser


Riksförbundet Rarliga Diagnoser was established in 1998. With a “rare diagnosis” is meant a condition or a disease that leads to extensive functional impairments and is present for no more than 1 person per 10,000 inhabitants. The definition is determined by the National Board of Health.
Rare diseases Sweden is a national alliance for different groups of rare diseases. As a public interest organization we can offer these groups membership in the organization.

The organization represents more than 50 different diagnoses and 12 000 individual members. A disease or disorder is in Sweden defined as rare when it affects less than 100 in one million. Living with a rare disease often involves a set of complex needs for support and treatment. The public healthcare systems often fail both in quality and in handling the individual with a rare disease in a correct way.

The main idea is that collectively we will have a greater impact on society and in the long term improve the situation both for people living with a rare disease as well as their families. Our communication efforts include not only politicians and decision makers but also health care givers, schools and other public agencies.


Geef een reactie

Vul je gegevens in of klik op een icoon om in te loggen. logo

Je reageert onder je account. Log uit /  Bijwerken )

Google+ photo

Je reageert onder je Google+ account. Log uit /  Bijwerken )


Je reageert onder je Twitter account. Log uit /  Bijwerken )

Facebook foto

Je reageert onder je Facebook account. Log uit /  Bijwerken )

Verbinden met %s